Related Experiment Video

Updated: Jul 4, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

3.7K

Shared-decision-making and communication in paediatric palliative care within Uganda

J Downing1, E Namukwaya2, J Nakawesi3

  • 1International Children's Palliative Care Network, Makerere/ Mulago Palliative Care Unit, Kampala, Uganda.

Current Problems in Pediatric and Adolescent Health Care
|January 25, 2024
PubMed

Insights

Paediatric palliative care in Uganda has advanced significantly over 30 years, with key roles played by the Ministry of Health and Palliative Care Association of Uganda. Further progress is needed to ensure all children with palliative needs access comprehensive care.

Area of Science:

  • Global Health
  • Palliative Care Medicine
  • Pediatrics

Background:

  • Palliative care services in Uganda originated 30 years ago, with continuous development since.
  • The Ministry of Health and Palliative Care Association of Uganda have been pivotal in advancing paediatric palliative care (PPC).

Purpose of the Study:

  • To review the development and current state of paediatric palliative care services in Uganda.
  • To explore factors influencing shared decision-making in Ugandan paediatric palliative care and identify future challenges and recommendations.

Main Methods:

  • Review of existing literature and service provision models for paediatric palliative care in Uganda.
  • Analysis of factors impacting decision-making within the Ugandan paediatric palliative care context.

Main Results:

  • A range of PPC service providers, educational programs, and research initiatives are established across Uganda.
  • PPC is delivered across the health system, catering to neonates through adolescents and young adults.
  • While shared decision-making is recognized, literature on its application in Uganda is limited, with various factors influencing it.

Conclusions:

  • Uganda has achieved substantial progress in paediatric palliative care provision.
  • Efforts are ongoing to expand access to PPC for all children with palliative needs and their families.
  • Addressing challenges and implementing recommendations is crucial for future service enhancement.

More Related Videos

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting14:43

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

11.8K
Protocol and Guidelines for Point-of-Care Lung Ultrasound in Diagnosing Neonatal Pulmonary Diseases Based on International Expert Consensus06:15

Protocol and Guidelines for Point-of-Care Lung Ultrasound in Diagnosing Neonatal Pulmonary Diseases Based on International Expert Consensus

Published on: March 6, 2019

49.9K

Related Concept Videos

Ethical Dilemmas II01:30

Ethical Dilemmas II

Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
1.1K
Ethical Issues01:27

Ethical Issues

Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
965
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.0K
Nursing Ethical Principles II01:27

Nursing Ethical Principles II

Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
979
Ethical Dilemmas I01:17

Ethical Dilemmas I

Ethical dilemmas in nursing are of utmost importance, as they often arise from the tension between adhering to core ethical principles and the practical realities of healthcare delivery. These dilemmas require nurses to navigate complex situations where competing ethical considerations pull them in different directions.
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
913
Continuing Care01:25

Continuing Care

Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.5K