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Representation of child and youth participation within the Unified Medical Language System (UMLS)

Vera C Kaelin1,2,3,4, Dianna L Bosak2, Shivani Saluja2

  • 1Department of Occupational Therapy, University of Illinois Chicago, Chicago, IL, USA.

Disability and Rehabilitation
|April 10, 2024
PubMed

Insights

The Unified Medical Language System (UMLS) poorly represents child and youth participation. Ontological resources need expansion for better data analytics in pediatric rehabilitation.

Area of Science:

  • Medical Informatics
  • Ontology Engineering
  • Child and Youth Health

Background:

  • The Unified Medical Language System (UMLS) is a crucial resource for medical informatics.
  • Understanding child and youth participation is vital in pediatric rehabilitation.
  • Existing UMLS concepts may not adequately capture the nuances of participation.

Purpose of the Study:

  • To assess the extent of participation representation within the UMLS.
  • To evaluate if UMLS representation aligns with the definition of child and youth participation.
  • To analyze representation based on the Participation-Related Constructs framework.

Main Methods:

  • Searched and analyzed UMLS concepts related to "participation."
  • Rated identified concepts based on representation of attendance, involvement, or both.
  • Employed deductive content analysis to evaluate definitions against participation constructs.

Main Results:

  • 363 UMLS concepts were identified; 68 had definitions analyzed.
  • Only 3% of definitions represented "attendance," and 22% represented "involvement."
  • No definition encompassed both attendance and involvement; most also represented related constructs.

Conclusions:

  • UMLS representation of participation is limited and misaligned with contemporary definitions.
  • There is a need to expand ontological resources for child and youth participation.
  • Improved resources will enhance data analytics in pediatric rehabilitation.
Abstract

Keywords:
Rehabilitationartificial intelligenceattendancehealth informaticsinvolvementknowledge representation

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