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Barriers to Transitional Care in Spina Bifida.
Catalina K Hwang1, Kelly T Harris1, Dan Wood1
1Division of Urology, Children's Hospital Colorado, 13123 East 16th Avenue, Box 323, Aurora, CO 80045, USA.
Children with spina bifida require lifelong, specialized care. Successful transition to adult healthcare is vital but faces significant barriers, necessitating improved strategies for ongoing patient well-being.
Area of Science:
- Pediatric Healthcare
- Neurology
- Public Health
Background:
- Spina bifida care needs evolve throughout a patient's life.
- Multidisciplinary, specialized provider contact is essential for health and quality of life.
- Despite research, successful transition to adult care remains a challenge.
Purpose of the Study:
- To review key aspects of spina bifida care.
- To examine the impact of inadequate transition to adult care.
- To identify barriers and propose future solutions for transition.
Main Methods:
- Literature review of spina bifida care and transition processes.
- Analysis of existing research on transition barriers.
- Synthesis of information to propose a future care model.
Main Results:
- Lifelong, specialized care is critical for spina bifida patients.
- Transition to adult care presents substantial obstacles.
- Current transition strategies are insufficient for many patients.
Conclusions:
- Effective transition from pediatric to adult care is crucial for spina bifida patients.
- Addressing identified barriers is necessary for improved outcomes.
- A future vision for integrated, lifelong care is proposed.
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