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A scale development study: Primary Caregiver Burden Scale Individuals Receiving Hemodialysis Treatment
Cansu Kosar Sahin1, Hatice Ceylan2, Canan Demir Barutcu3
1Department of Internal Medicine Nursing, Faculty of Health Sciences, Manisa Celal Bayar University, Manisa, Turkey.
Summary
A new scale was developed to measure the burden on caregivers of hemodialysis patients. This validated tool assesses self-management support, psychological support, caregiver symptoms, and coping strategies for improved patient care outcomes.
Area of Science:
- Nursing
- Psychometrics
- Health Services Research
Background:
- Hemodialysis is a long-term treatment requiring significant patient self-management.
- Caregiver burden in hemodialysis significantly impacts patient health outcomes.
- There is a need for an updated, psychometrically sound scale to assess caregiver burden.
Purpose of the Study:
- To develop and validate an up-to-date scale measuring caregiver burden in patients undergoing hemodialysis.
- To examine the psychometric properties of newly developed scale items.
- To provide a reliable tool for assessing the multifaceted aspects of caregiver burden.
Main Methods:
- Methodological study utilizing the COSMIN Checklist.
- Sample: 404 primary caregivers of hemodialysis patients.
- Data analysis included exploratory/confirmatory factor analysis, predictive validity, Cronbach's alpha, item analysis, and test-retest reliability.
Main Results:
- Exploratory factor analysis revealed a four-subdimension structure, confirmed by confirmatory factor analysis.
- The final 34-item scale demonstrated high reliability (Cronbach's alpha = 0.95 for total scale).
- Subscale reliability ranged from 0.91 to 0.93, indicating strong internal consistency.
Conclusions:
- The Primary Caregiver Burden Scale for Individuals Receiving Hemodialysis Treatment meets validity and reliability criteria.
- The scale features a 4-point Likert structure with 34 items across four subdimensions.
- This validated scale is poised to contribute significantly to international nursing literature and practice.
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