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Building Community Engagement Capacity in a Transdisciplinary Population Health Research Consortium.
Aimee S James1, Jesse Nodora2, Julia Maki3
1Division of Public Health Sciences, Washington University in St. Louis School of Medicine, St. Louis, MO.
Community engagement in research is a priority. This paper shares best practices for building robust, equitable, and anti-racist community-engaged research in large consortia.
Area of Science:
- Population health research
- Health equity
- Community-engaged research
Background:
- Community engagement is a National Institutes of Health research priority.
- Scholars advocate for community engagement to address racism and equity in science.
- Community-engaged research enhances study quality, inclusion, and real-world impact.
Purpose of the Study:
- To describe lessons learned and best practices for community engagement in a multi-institution population health research consortium.
- To outline a staged and stepped process for building and embedding community-engaged research.
- To provide recommendations for other large research consortia.
Main Methods:
- A staged development process: (a) awareness, (b) solidarity building, (c) long-term engagement.
- A stepped process: strategic planning, momentum building, institutionalization, and plan evaluation.
- Transition from informal interactions to systematic, formalized, reciprocal engagement.
Main Results:
- Successful implementation of a multi-level community-engaged research approach.
- Development of a foundation for sustained community engagement within the consortium.
- Identification of challenges and solutions for effective community engagement.
Conclusions:
- Investing time to build community engagement capacity is crucial.
- Acknowledging community strengths and grounding work in anti-racist principles are essential.
- A strong infrastructure for accountability ensures meaningful research translation.
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