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Communicating with Parents About Therapeutic Hypothermia and Hypoxic Ischemic Encephalopathy: Integrating a

Alexa K Craig1, Sara Munoz-Blanco2, Betsy Pilon3

  • 1Division of Pediatric Neurology, Department of Pediatrics, The Barbara Bush Children's Hospital at Maine Medical Center, Portland; Department of Pediatrics, Tufts University School of Medicine, Boston, MA, USA.

Clinics in Perinatology
|August 2, 2024
PubMed

Parents of newborns with hypoxic ischemic encephalopathy (HIE) can face communication challenges in the neonatal intensive care unit. Both specialty palliative care and primary palliative care trained clinicians can assist parents as they navigate traumatic experiences and uncertain prognoses. Using evidence-based frameworks, the authors provide samples of how to communicate with parents and promote parent well-being across the care trajectory. The authors demonstrate how to involve parents in a shared decision-making process and give special consideration to the complexities of hospital discharge and the transition home. Sustained investment to guide the development of effective communication skills is crucial to support families of infants with HIE.

Keywords:
Hypoxic ischemic encephalopathyNeonatal encephalopathyParent communicationPediatric palliative careTherapeutic hypothermiaTrauma informed care

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