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Nordic Citizens' Willingness to Share Digital Health Data.
Jeppe Eriksen1, Camilla Bidstrup Hjermitslev1, Jarmo Reponen2
1Department of Sustainability and Planning, Aalborg University, Denmark.
Studies in Health Technology and Informatics
|August 23, 2024
Summary
Most Nordic citizens are willing to share their digital health data with healthcare providers and for research. Willingness to share health data decreases with age but increases with education level.
Area of Science:
- Digital Health
- Health Informatics
- Public Health
Background:
- Digital healthcare systems depend on citizen engagement and data sharing.
- Understanding citizen attitudes towards digital health data is crucial for system quality.
- Nordic citizens' perspectives on sharing digital health data remain under-examined.
Purpose of the Study:
- To investigate Nordic citizens' willingness to share digital health data.
- To explore data sharing preferences with healthcare providers versus for research.
- To identify demographic factors influencing data sharing willingness.
Main Methods:
- Cross-sectional study design.
- Survey administered to 5078 citizens across Denmark, Finland, Iceland, Norway, and Sweden.
- Descriptive statistics and odds ratio analysis employed.
Main Results:
- A majority of Nordic citizens expressed willingness to share clinically relevant health data.
- Willingness to share data was higher with healthcare providers than for research purposes.
- Odds of sharing health data decreased with increasing age.
- Higher education levels correlated with increased odds of sharing health data.
Conclusions:
- Most Nordic citizens are amenable to sharing their digital health data.
- Age and education level are significant determinants of health data sharing willingness.
- Targeted support and awareness initiatives are needed for citizens less engaged with digital health systems.
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