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Child and Family Outcomes and Experiences Related to Family-Centered Care Interventions for Hospitalized Pediatric
Christine R Hodgson1, Renee Mehra1, Linda S Franck1
1School of Nursing, Family Health Care Nursing, University of California, San Francisco, CA 94143, USA.
Insights
Family-centered care (FCC) interventions in pediatric inpatient settings show promise for improving parental well-being and participation. However, higher-quality research is needed to confirm child outcomes and support global adoption of FCC.
Area of Science:
- Pediatric Healthcare Research
- Family-Centered Care Models
- Evidence-Based Interventions
Background:
- Family-centered care (FCC) is the recommended standard for pediatric inpatient care.
- Contemporary research on FCC effectiveness for pediatric inpatients requires synthesis and critique.
- Evaluating child and parent outcomes is crucial for assessing FCC interventions.
Purpose of the Study:
- To conduct a narrative synthesis of recent research on FCC interventions for pediatric inpatients.
- To critique studies evaluating the effectiveness of FCC interventions on child or parent outcomes.
Main Methods:
- A systematic literature search was performed across five databases (PubMed, CINAHL, Embase, PsychInfo, Web of Science).
- Peer-reviewed research published between January 2017 and February 2024 was included.
- Data from eligible studies were extracted and narratively synthesized by independent reviewers.
Main Results:
- Sixteen studies of 15 FCC interventions across six countries were analyzed.
- Interventions included family-centered rounds, health IT, education, navigation, peer support, and parent participation.
- Most studies reported significant improvements in parental well-being, knowledge, participation, and reduced stress; child outcomes showed mixed results.
Conclusions:
- FCC interventions demonstrate positive effects on parental outcomes.
- A notable limitation is the scarcity of high-quality comparative studies with validated tools and well-defined interventions.
- Enhanced research quality is essential for broader global implementation and sustainability of FCC.
Background/Objectives:
Family-centered care (FCC) is the recommended model for pediatric inpatient care. Our overall aim was to conduct a narrative synthesis of the contemporary published research on the effectiveness of FCC interventions for pediatric inpatients. Our specific objective was to critique studies of inpatient pediatric FCC interventions that evaluated child or parent outcomes.
Methods:
We searched five databases (Pubmed, CINAHL, Embase, PsychInfo, and Web of Science) for peer-reviewed research published from 1 January 2017 to 6 February 2024. Independent reviewers evaluated each study based on pre-specified inclusion and exclusion criteria, then extracted and narratively synthesized the data.
Results:
We found 16 studies of 15 interventions conducted in six countries. The studies were quantitative (n = 11), qualitative (n = 3), and mixed methods (n = 2), with most designs being of low to moderate quality based on a modified Mixed-Methods Appraisal Tool. Interventions included family-centered rounds, parent-focused health information technology, education, patient navigation, parent-peer support, partnership, and parent participation in caregiving. Most studies found significant improvements in parents' well-being, knowledge, and participation, as well as decreased stress and anxiety with the FCC interventions compared to usual care. One study found no differences in child outcomes (infant feeding, length of stay) between usual care and a parent-participation intervention.
Conclusions:
Although FCC interventions led to many improved outcomes for parents, there were few well-designed comparison studies using validated tools and well-defined interventions. Higher quality research is needed to promote greater uptake and sustainability of FCC interventions globally.
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