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Digital Stories Created by Children With Advanced Cancer.

Morgan L Whitlow1, Mary Jo Gilmer1, Mary S Dietrich1

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Summary
This summary is machine-generated.

Children with advanced cancer created digital legacy stories, emphasizing family and personal traits. These stories reveal how children perceive their legacies, including cancer as a part of their identity.

Keywords:
cancerdigital storytellingoncologyqualitative researchweb-based intervention

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Area of Science:

  • Pediatric Oncology
  • Child Psychology
  • Digital Humanities

Background:

  • Legacy building is crucial in pediatric oncology.
  • Digital storytelling aids children in documenting their legacies.
  • Understanding children's legacy content is underexplored.

Purpose of the Study:

  • To explore the content of digital stories created by children with advanced cancer.
  • To understand how children with cancer wish to be remembered.

Main Methods:

  • Recruited 150 parent-child dyads of children (7-17) with relapsed/refractory cancer.
  • Utilized a randomized controlled trial with a legacy intervention via storytelling.
  • Employed a web program for story creation (text, photos, movies, music) and qualitative coding of 78 stories.

Main Results:

  • Analyzed 1,516 story entries across 78 digital stories.
  • Identified two main categories: story entry medium and story content.
  • Content included people, settings, cancer, objects/activities, and emotions/beliefs, with photos often showing loved ones and places, and text detailing preferences and dreams.

Conclusions:

  • Children's digital stories highlight the importance of family relationships.
  • Children desire to be remembered for personal traits and preferences.
  • Cancer is integrated into children's perception of their legacy.