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Intensive Outpatient Programs for Pediatric Feeding Disorder: A Qualitative Study of Current Challenges and Future
Navya Baranwal1, Abby Hodges2, Courtney E Breiner2
1The Warren Alpert Medical School of Brown University, Providence, RI.
Journal of Developmental and Behavioral Pediatrics : JDBP
|September 30, 2024
Summary
Intensive multidisciplinary interventions (IMIs) effectively treat pediatric feeding disorders (PFD), but patient access is hindered by patient, program, and system barriers. Addressing these challenges is crucial for improving care.
Area of Science:
- Pediatric Gastroenterology
- Developmental Pediatrics
- Healthcare Access Research
Background:
- Intensive multidisciplinary interventions (IMIs) are beneficial for pediatric feeding disorders (PFD).
- Access to these specialized PFD programs is limited.
- Challenges encountered by PFD programs are not well understood.
Purpose of the Study:
- Identify barriers in intensive multidisciplinary intervention (IMI) day programs for pediatric feeding disorders (PFD).
- Examine disparities in patient care within these PFD programs.
- Determine areas for improvement to enhance policy and treatment access for PFD.
Main Methods:
- Conducted semi-structured interviews with leaders of outpatient IMI programs in the US.
- Collected data on leader perspectives regarding patient care disparities, program barriers, and future goals.
- Performed qualitative content analysis to categorize information on patient care, access, and barriers for PFD programs and patients.
Main Results:
- Identified patient-level barriers: familial resources, socioeconomic status, geographic distance, and time commitment.
- Identified program-level barriers: limited personnel/capacity and long wait times.
- Identified system-level barriers: inconsistent insurance coverage and limited payer knowledge of PFD and IMIs.
Conclusions:
- IMIs are effective for PFD, but patient-level, program-level, and system-level factors impede access and program success.
- Further research, improved reimbursement, and treatment consensus statements are needed.
- These improvements can enhance access to and coverage for PFD care, supporting program development and sustainability.
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