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Evaluating public and patient involvement in interventional research-A newly developed checklist (EPPIIC)
Elise Pyne1, Robert Joyce2, Christopher P Dwyer3
1School of Medicine, College of Medicine, Nursing and Health Sciences, University of Galway, Galway, Ireland.
A new checklist, EPPIIC, was developed to assess public and patient involvement (PPI) in clinical trials. This tool addresses limitations in existing frameworks, offering a comprehensive evaluation of PPI effectiveness.
Area of Science:
- Clinical Research Methodology
- Patient Engagement in Trials
Background:
- Public and patient involvement (PPI) enhances clinical research quality, accessibility, and relevance.
- Existing PPI assessment frameworks often have limitations, including context-specificity and lack of comprehensiveness.
Purpose of the Study:
- To address limitations in current PPI assessment tools.
- To develop a new, comprehensive checklist for evaluating PPI in clinical trials.
Main Methods:
- Systematic review and thematic analysis of existing PPI frameworks.
- Meta-evaluation incorporating public and patient engagement.
- Development and validation of the EPPIIC checklist.
Main Results:
- The developed checklist, EPPIIC, emerged with three thematic sub-scales: Policy & Practice, Participatory Culture, and Influence & Impact.
- EPPIIC offers a more comprehensive and less biased assessment of PPI compared to existing tools.
Conclusions:
- The EPPIIC checklist is recommended as a valuable tool for assessing public and patient involvement in future clinical trials.
- This new instrument aims to improve the quality and reporting of PPI in research.
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