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Patient-Generated Data as Interventions in Doctor-Patient Relationships? Negotiating (Un)Invited Participation in
Ann Kristin Augst1, Danny Lämmerhirt2, Cornelius Schubert1
1Department of Social Sciences, TU Dortmund, Dortmund, Germany.
Sociology of Health & Illness
|November 14, 2024
Summary
Physicians show varied responses to patient-generated health data (PGD) from consumer devices. Some reject PGD, others tolerate it, and some integrate it into diagnostics, impacting medical authority.
Area of Science:
- Digital Health
- Medical Sociology
- Patient-Reported Outcomes
Background:
- Consumer health devices increasingly capture biomedical data, extending beyond certified technologies.
- This data collection impacts the doctor-patient relationship and medical authority dynamics.
Purpose of the Study:
- To outline physicians' diverse responses to patients using consumer devices for health data collection.
- To explore how patient-generated data (PGD) challenges or reinforces medical authority in outpatient settings.
Main Methods:
- Semi-structured interviews with doctors and chronically ill patients in Germany (2021-2023).
- Comparative case analysis across diabetes, sleep disorders, cardiovascular conditions, obesity, and ME/CFS.
Main Results:
- Physicians' responses to PGD range from rejection to tolerance to integration into diagnostic practices.
- Strategies for incorporating PGD vary among medical specialists based on context and perceived competition with diagnostic activities.
Conclusions:
- Physician acceptance of PGD from consumer devices is nuanced, involving complex negotiations of medical authority.
- Understanding these varied responses is crucial for navigating the integration of PGD in clinical practice.
Keywords:
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