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Reimagining Neonatal Follow-Up: An Equitable Model of Care Emphasizing Family and Child Function
Paige Terrien Church1, Rudaina Banihani2, Jonathan Samuel Litt1
1Department of Neonatology, Beth Israel Deaconess Medical Center, 330 Brookline Avenue, Rose 334, Boston, MA 02215, USA.
Insights
This review highlights challenges and inequity in neonatal follow-up care, proposing a model for equitable, function-focused care for premature infants in all settings.
Area of Science:
- Neonatal Medicine
- Public Health
- Healthcare Delivery Systems
Background:
- Neonatal follow-up programs are crucial for assessing outcomes of preterm infants.
- Historical reviews reveal persistent challenges in accessing and receiving equitable care.
- Parental perspectives on important outcomes are often overlooked in traditional follow-up.
Purpose of the Study:
- To review the history and challenges of neonatal follow-up.
- To identify inequities in access and delivery of care.
- To propose an equitable, function-focused model for neonatal follow-up.
Main Methods:
- Systematic review of historical neonatal follow-up literature.
- Analysis of common and parent-identified outcomes of prematurity.
- Assimilation of evidence from various care models.
- Development of a proposed care model integrating local resources and academic centers.
Main Results:
- Significant challenges and inequities exist in neonatal follow-up access and delivery.
- Common and parent-prioritized outcomes of prematurity are identified.
- Various care models demonstrate potential for improved delivery.
- A collaborative, resource-leveraging model can enhance equity.
Conclusions:
- Addressing historical inequities in neonatal follow-up is essential.
- A function-focused, equitable care model is needed for all infants.
- Collaboration between local resources and academic centers can improve care delivery.
- Future models should prioritize parental-identified outcomes and functional status.
Abstract:
This review of the history of neonatal follow-up identifies the challenges, inequity in access to care and the inequity in care delivery. It also reviews the outcomes of prematurity with a focus on common outcomes and those outcomes identified by parents as important. It assimilates the evidence around various models of care to model a program that provides care in all environments (rural and urban), leveraging local resources in collaboration with academic centers to provide greater equity in care delivery and an emphasis on function, rather than data collection.
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