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Understanding Complex Care Through Narrative Medicine: A Qualitative Study.

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This summary is machine-generated.

Family-led narrative medicine training improved clinician and family perspectives on caring for children with medical complexity. This approach fosters collaborative, patient-centered care by enhancing mutual understanding and shifting views on managing complex health needs.

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Area of Science:

  • Medical Education
  • Qualitative Research
  • Patient-Centered Care

Background:

  • Pediatrician training often lacks preparation for managing children with medical complexity (CMC) within a team.
  • Narrative medicine offers a framework for enhancing clinician-family understanding and collaborative care.
  • Family-led interprofessional narrative medicine training was implemented to address these gaps.

Purpose of the Study:

  • To explore participants' perspectives on family-led interprofessional narrative medicine training.
  • To assess the impact of narrative medicine on collaborative care for CMC.
  • To identify shifts in understanding and practice among clinicians and families.

Main Methods:

  • Qualitative study using narrative medicine training grounded in entrustable professional activities (EPAs).
  • Recruited clinicians and families of CMC for 6 interprofessional workshops.
  • Thematic analysis of EPA definitions and workshop transcripts to develop a conceptual model.

Main Results:

  • 3 interprofessional cohorts (35 participants) with high participation rates were included.
  • Four emergent themes indicated shifts in perspective: fragmented to holistic care, intractable to navigable complexity, transactional to relational connection, and isolated to community care.
  • Findings supported patient- and family-centered care principles.

Conclusions:

  • Narrative medicine training positively altered clinician and family perspectives on complex care activities.
  • Further research into colearning models for pediatricians and families is recommended.
  • This approach can foster team-based, patient- and family-centered care for CMC.