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Using Grief for Good: The Transformative Effect of Participatory Action Research for Parents With Intellectual
Margaret Spencer1, Susan Collings2, Hannah Wilkinson1
1Sydney School of Education and Social Work, University of Sydney, New South Wales, Australia.
Participatory action research (PAR) offers a transformative space for parents with intellectual disability who have experienced child removal. This approach empowers them to process grief and advocate for better support systems.
Area of Science:
- Social Sciences
- Psychology
- Disability Studies
Background:
- Parents with intellectual disability face significant challenges, including high rates of child removal.
- Child removal negatively impacts the well-being of parents with intellectual disability.
Purpose of the Study:
- To explore the experiences of parents with intellectual disability who have had children removed from their care.
- To investigate the potential of participatory action research (PAR) as a supportive intervention.
Main Methods:
- A qualitative approach using participatory action research (PAR).
- Eight parents with intellectual disability participated, having experienced child removal.
- Semi-structured interviews were conducted before and after the PAR intervention.
Main Results:
- Parents reported PAR created a safe space for emotional processing.
- Key themes included revisiting past experiences and processing grief.
- The experience was cathartic, enabling parents to transform negative emotions into advocacy.
Conclusions:
- Participatory action research (PAR) can be a transformative process for parents with intellectual disability.
- PAR empowers parents to advocate for themselves and contribute to improved care practices.
- This approach fosters agency and supports the well-being of parents with intellectual disability.
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