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Using Grief for Good: The Transformative Effect of Participatory Action Research for Parents With Intellectual
Margaret Spencer1, Susan Collings2, Hannah Wilkinson1
1Sydney School of Education and Social Work, University of Sydney, New South Wales, Australia.
Background:
Parents with intellectual disability experience high rates of child removal, which affects their well-being.
Method:
Participatory action research (PAR) was undertaken with eight parents with intellectual disability who had children removed from their care. Parents were interviewed before and after the PAR. Three themes emerged: a safe space, revisiting the past and grief for good.
Result:
Parents reported that participating in the PAR was cathartic, allowing them to transform feelings of grief and injustice into actions that benefitted other parents.
Conclusion:
PAR can be transformative, enabling parents with intellectual disabilities to advocate for and contribute to improved practices.
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