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Patient research partners in core outcome set development: a systematic review

Nan-Su Huang1, Ian J Saldanha2, Ann-Margret Ervin3

  • 1Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.

Journal of Clinical Epidemiology
|August 9, 2025
PubMed
Summary

Patient research partners (PRPs) play a vital role in developing core outcome sets (COS). This review found varied PRP involvement, highlighting the need for consistent terminology and engagement strategies guided by resources like the COMET Handbook.

Keywords:
Core outcome set (COS)OutcomesPatient and public involvement (PPI)Patient research partner (PRP)

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