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Perspectives of Patients on Communication and Involvement in Decision-Making during Palliative Care: A Qualitative
Evelyne Nankundwa1, Clementine Kanazayire2, Fitch Margaret3
1General Nursing Department, School of Nursing and Midwifery, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Rwanda Journal of Medicine and Health Sciences
|September 24, 2025
Summary
Effective communication in palliative care is vital for patient involvement in decision-making. Patients often receive unclear information, highlighting the need for person-centered communication strategies to align care with their values.
Area of Science:
- Palliative Care
- Health Communication
- Patient Engagement
Background:
- Effective communication is essential in palliative care for understanding patient needs and preferences.
- Clear information exchange, shared decision-making, and empathetic relationships are key components.
Purpose of the Study:
- To explore patient perceptions of communication and decision-making engagement in palliative care.
- To understand patient experiences with healthcare providers during advanced illness.
Main Methods:
- Qualitative research design utilizing semi-structured interviews.
- Data analysis employed Interpretative Phenomenological Analysis (IPA).
Main Results:
- Identified four main themes: perceptions of communication, impact of conversations, challenges in discussions, and engagement in decision-making.
- Eight subthemes provided detailed insights into patient experiences.
Conclusions:
- Communication is fundamental for patient involvement in palliative care decision-making.
- Patients often experience insufficient information, especially during critical illness stages.
- Targeted, person-centered communication is necessary to support patient engagement and align care with values.
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