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Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
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Co-Designing Peer Support for Women Labelled With Intellectual Disabilities Who Have Experienced Sexual Violence.

Alexis Buettgen1, Tammy Bernasky2, Kelly MacDougall3

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Women with intellectual disabilities are advancing peer support through collaborative research. This inclusive model prioritizes lived experience, promoting equality and equity in services and research design.

Keywords:
arts‐based methodsexperience‐based co‐designintellectual disabilitypeer supportsexual violence

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Area of Science:

  • Disability Studies
  • Community Health
  • Social Inclusion

Background:

  • Women with intellectual disabilities experience significant social exclusion and violence.
  • Limited research and services exist for this population.
  • Peer support offers valuable recognition of diverse lived experiences and nonprofessional perspectives.

Purpose of the Study:

  • To highlight collaborative efforts in advancing peer support for women with intellectual disabilities.
  • To foster inclusive research and programme development through a multistakeholder approach.

Main Methods:

  • Applied research project utilizing trauma-informed, arts-based, and human-rights-focused co-design.
  • A 3-day virtual symposium facilitated inclusive research and programme development.

Main Results:

  • Shared control of research agendas was emphasized, prioritizing lived experience knowledge.
  • Women gained greater control over research through co-creative practices.
  • Meaningful inclusion of women in the design of future research and programming was achieved.

Conclusions:

  • The inclusive model promotes equality and equity for women with intellectual disabilities.
  • Advocates for positive discourse surrounding intellectual disabilities.
  • Bridges lived, academic, and professional insights within the field.