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Development of a Diabetes Rural Stakeholder Research Team and Patient-Centered Research Agenda
Vanessa D Jewell1, Amy A Abbott2, Emily Knezevich2
1The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
This study highlights the importance of academic-community partnerships for addressing type 1 diabetes (T1D) in rural areas. A stakeholder engagement plan fostered collaboration, leading to a patient-centered research agenda for T1D care.
Area of Science:
- Community-based participatory research
- Public health
- Diabetes management
Background:
- Rural communities face unique challenges in managing type 1 diabetes (T1D).
- Collaborative academic-community partnerships are essential for developing effective healthcare strategies.
- Unmet needs in rural T1D care necessitate innovative approaches.
Purpose of the Study:
- To establish a strong community-academic research partnership.
- To build research capacity at individual and community levels.
- To create a patient-centered research agenda for rural type 1 diabetes.
Main Methods:
- Implemented a four-strategy stakeholder engagement plan.
- Assessed capacities for collaboration and identified partners.
- Reframed health issues and nurtured partnerships for research.
Main Results:
- Successfully met all project objectives.
- Established a co-developed research agenda for rural T1D.
- Ongoing impactful research addressing lifestyle, access to care, and technology use.
Conclusions:
- A stakeholder engagement plan is crucial for sustainable community-academic research collaborations.
- Partnerships enhance the development and testing of novel healthcare strategies.
- Co-developed agendas ensure research relevance and impact in rural T1D.
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