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Related Concept Videos

Ethical Standards I01:25

Ethical Standards I

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The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
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Nurses bear specific legal responsibilities under several federal statutes, including:
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Ethical Standards II01:23

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Nursing Ethical Principles II01:27

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Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
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Guidelines and Strategies for Safe Computer Charting01:18

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The guidelines and strategies provided by the American Nurses Association (ANA) and the Canadian Nurses Association (CNA) offer essential principles for ensuring safe and secure computer charting systems in healthcare settings. Let's break down each recommendation:
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Updated: Jan 12, 2026

TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients
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Towards better Diabetes Data Rights: Data protection, data 'ownership', and developing a patient charter.

Ruby Reed-Berendt1,2, Jessica Bell3, Louise Hatherall1

  • 1Birmingham Law School, University of Birmingham, Birmingham, UK.

Diabetic Medicine : a Journal of the British Diabetic Association
|November 6, 2025
PubMed
Summary

People with diabetes generate vast amounts of health data. Existing laws, like the General Data Protection Regulation, offer some data rights, but a clearer framework is needed for better control and protection of diabetes data.

Keywords:
clinical diabetesdata ownershipdata protectiondiabetes data

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Area of Science:

  • Health Informatics
  • Medical Law
  • Data Governance

Background:

  • Increasing use of technology in diabetes care generates large volumes of patient data.
  • Growing demand from individuals with diabetes for greater access and control over their health information.

Purpose of the Study:

  • To analyze the legal challenges surrounding the use and control of diabetes data.
  • To evaluate existing legal frameworks in the UK and EU concerning patient data.
  • To propose solutions for enhancing data rights for people with diabetes.

Main Methods:

  • Legal analysis of UK and EU data protection regulations.
  • Examination of existing data subject rights under the General Data Protection Regulation.
  • Review of emerging frameworks and proposed data rights charters.

Main Results:

  • Current legal frameworks in the UK and EU lack a clear structure to balance interests in diabetes data.
  • 'Data ownership' concepts do not align well with existing legal structures and may not provide desired protections.
  • Under-utilized legal mechanisms, such as GDPR data subject rights, are available to individuals with diabetes.

Conclusions:

  • Existing legal frameworks are insufficient to fully address the complexities of diabetes data control and access.
  • Calls for 'data ownership' need careful consideration within current legal contexts.
  • Developing specific frameworks, like a Diabetes Data Rights Charter, could better support the interests of people with diabetes regarding their data.