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System-Wide Use of Patient-Reported Outcome Measures in Organization for Economic Co-operation and Development
Candan Kendir1, Ana Sofia V Carvalho2, Sophie Tran3
1Directorate for Employment, Labour and Social Affairs, Organisation for Economic Co-Operation and Development (OECD), Paris, France; Amsterdam UMC location University of Amsterdam, Public and Occupational Health, Amsterdam, The Netherlands.
Patient reported outcome measures (PROMs) are used in 21 OECD countries, primarily for quality improvement. System-wide implementation faces barriers like limited staff and technology, requiring better resource allocation and data integration.
Area of Science:
- Health Services Research
- Health Informatics
- Patient-Centered Care
Background:
- Patient reported outcome measures (PROMs) are crucial for integrating patient perspectives into healthcare.
- Value-based and people-centered healthcare models increasingly rely on systematic PROM data collection.
Purpose of the Study:
- To assess the current systematic use of PROMs across OECD countries.
- To identify barriers and enablers for system-wide PROMs implementation from decision-makers' viewpoints.
Main Methods:
- A cross-sectional country-level survey was administered to officials in 38 OECD countries.
- Implementation barriers and enablers were analyzed using the i-PARIHS framework.
- Survey findings were validated through online workshops with key informants.
Main Results:
- 44 PROMs programs were identified in 21 of 38 surveyed countries, mainly for quality improvement (95%) and assurance (55%).
- Healthcare professionals (93%) and patients (81%) were engaged, with online completion common (73%), but EHR integration was limited (39%).
- Key barriers included limited staffing, technological challenges, and insufficient training for patients and professionals.
Conclusions:
- System-wide PROMs implementation can be advanced through improved resource allocation.
- Meaningful stakeholder engagement and embedding PROMs into data infrastructures are essential.
- Addressing identified barriers is critical for broader adoption and impact.
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