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Adaptation and Validation of the Fear of Blistering Disease Recurrence Inventory
Marney A White1,2, Sébastien Simard3,4, Marc Yale5
1Department of Social and Behavioral Sciences, Yale School of Public Health, New Haven, Connecticut, USA, marney.white@yale.edu.
Introduction:
Autoimmune blistering diseases (AIBDs) are severe, life-threatening conditions known for their debilitating physical and psychological impacts. The conditions also have a high rate of recurrence, leading to patient distress. This study adapted and validated a widely used measure, the Fear of Cancer Recurrence Inventory - Short Form, for use with patients with AIBDs.
Methods:
Adult volunteers (n = 219) with AIBD completed an anonymous online questionnaire battery. In addition to the Fear of Blistering Disease Recurrence Inventory - Short Form (FBDRI-SF), participants provided demographic and disease course information and completed the ultra-brief Patient Health Questionnaire for Depression and Anxiety (PHQ-4).
Results:
The FBDRI-SF demonstrated excellent psychometric properties. Scores on the FBDRI-SF were associated with disease course, depression, and anxiety, suggesting that it is a valid indicator of clinically significant psychological distress.
Conclusion:
The FBDRI-SF is a brief and useful screen to identify AIBD patients likely to benefit from psychological evaluation and support.
