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The Progressive Aphasia Communication Toolkit (PACT): A Strengths-Based Approach to Multidomain Evaluation for
Jeanne Gallée1,2, Jade Cartwright3, Maya L Henry4
1Department of Medicine, University of Washington, Seattle.
Introduction:
Tools to document communicative ability in people living with primary progressive aphasia (PwPPA) are limited. This work describes the development of a strengths-based and ecologically-valid instrument-the Progressive Aphasia Communication Toolkit (PACT).
Methods:
This work consisted of five experiments: two to develop (Experiments 1 and 2) and three to pilot (Experiments 3-5) a novel instrument for PPA. Ninety-five individuals worldwide contributed to this work: 80 researchers and clinicians, 9 PwPPA, and 6 care partners.
Results:
Experiments 1-2 culminated in an instrument comprising four scales that capture quantitative and qualitative feedback. Experiments 3-5 resulted in structural refinement and digitization of the tool, revealed PwPPA and care partner preference for the PACT over traditional neuropsychological evaluation, and demonstrated strong inter-rater agreement for general measurability (91%) and strength ratings (85%).
Discussion:
Current findings indicate that the PACT provides a holistic profile of communication strengths for PwPPA and can guide clinicians in developing functional therapeutic targets.
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