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Evaluation of Hospice@Home for Home-Based Palliative Care: Development and Usability Pilot Study
So-Hi Kwon1, Mikyoung Angela Lee2, Young-Joo Kim1
1Research Institute of Nursing Innovation, College of Nursing, Kyungpook National University, 80, Daehak-ro, Buk-gu, Daegu, 41566, Republic of Korea, 82 10-8564-5345.
This pilot study developed Hospice@Home, a digital tool for home-based palliative care. Early results show it is usable and feasible for patients with terminal cancer and their caregivers, improving reassurance and connection to care.
Area of Science:
- Digital Health
- Palliative Care
- Home Healthcare
Background:
- Rising demand for palliative care due to aging populations and chronic illnesses.
- Limited access to timely palliative care, especially for rural home-based hospice patients.
- Digital health technologies offer potential to improve home-based care delivery and communication.
Purpose of the Study:
- Develop the Hospice@Home system, a digital solution for in-home hospice care.
- Assess the preliminary usability and feasibility of Hospice@Home for patients with terminal cancer and their caregivers.
- Identify challenges for future implementation of digital home-based palliative care solutions.
Main Methods:
- Human-centered, evidence-driven design approach for system development.
- Alpha testing with simulated patients for functionality assessment.
- 3-week beta test with 5 patient-caregiver dyads for usability and feasibility evaluation.
Main Results:
- Hospice@Home integrates wearable biosignal data and patient self-reports for comprehensive symptom monitoring.
- Patients and caregivers reported feeling more reassured and connected to clinical support.
- Usability satisfaction ratings averaged 3.3 for patients and 4.0 for caregivers (5-point scale); task compliance was high.
- Identified challenges include data entry fatigue, psychological barriers, and preference for phone communication.
Conclusions:
- Hospice@Home demonstrates initial usability and feasibility for home-based palliative care.
- Preliminary findings suggest potential value in supporting patients with terminal cancer and their caregivers.
- Further refinement and iterative testing are necessary to confirm effectiveness and clinical impact.
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