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Overview of support associations and other useful resources
1Villers Sainte Gertrude, Luxembourg, Belgium.
Abstract:
Support associations specifically for tic disorders, such as Tourette syndrome (TS), have the potential to profoundly impact individuals, families, and general awareness. This chapter explores the multifaceted roles of support associations, as well as their evolution - from small groups formed by individuals with a vested interest to large organizations managing multimillion-dollar research funding. Support associations face many challenges, making collaboration within and between countries essential. People with lived experience, clinicians, and researchers each bring valuable expertise to efforts aimed at improving the quality of life for those affected by tics and TS. Support associations serve as a vital nexus, connecting stakeholders and facilitating collaboration to drive meaningful progress.
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