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Updated: May 8, 2026
07:27
Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Organizational Factors to Support Collaborative Care in Adult Congenital Heart Disease Programs
Seiji Ito1,2, In Hye Park3, Tonia C Carter3
1Division of Cardiology, Children's National Hospital, 111 Michigan Ave NW, Washington, DC, USA. sito@childrensnational.org.
Pediatric Cardiology
|May 7, 2026
Summary
Collaboration in adult congenital heart disease (ACHD) programs is vital. This study found leadership and connectivity were strong, but goals and information exchange need improvement, especially in pediatric-focused programs.
Area of Science:
- Cardiology
- Healthcare Management
- Organizational Behavior
Background:
- Effective collaboration among healthcare professionals is essential for managing adult congenital heart disease (ACHD) patients.
- ACHD programs require specific organizational structures to address the complex needs of this growing patient population.
Purpose of the Study:
- To delineate the organizational structure, environment, and collaboration indicators within US-based ACHD programs.
- To identify factors influencing collaboration and areas for improvement in ACHD care delivery.
Main Methods:
- A cross-sectional survey was administered to 86 ACHD programs across the United States.
- The survey assessed program characteristics, personnel, services, and ten collaboration indicators based on D'Amour's model.
- Data analysis included descriptive statistics and subgroup comparisons based on primary institution type.
Main Results:
- 36 ACHD programs (41.8% response rate) participated, primarily from combined adult and pediatric institutions.
- Leadership and connectivity scored highest among collaboration indicators; goals, formalization tools, and information exchange scored lowest.
- Combined adult and pediatric institutions reported significantly higher levels of support for innovation, formalization tools, and information exchange compared to pediatric-only institutions.
Conclusions:
- ACHD programs exhibit varied organizational structures and environments, with distinct collaboration strengths and weaknesses.
- Opportunities exist to enhance collaboration by focusing on goal alignment, formalization of processes, and improved information exchange.
- Integrated adult and pediatric settings may foster better collaborative environments within ACHD programs.
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