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Adulting in the Current Era: Piloting an Individualized In-Person Congenital Heart Disease Transition Education
John C Shabosky1, Victoria A Brentari2, Nicole S Broussard2
1Heart Institute, Cincinnati Children's Hospital Medical Center and University of Cincinnati, 3333 Burnet Ave C4, Cincinnati, OH, 45209, USA. john.shabosky@cchmc.org.
Pediatric Cardiology
|August 14, 2026
Summary
Individualized programs improve transition readiness for adolescents with congenital heart disease (CHD). Serial visits boosted CHD knowledge, skills, and engagement, regardless of disease complexity.
Area of Science:
- Cardiology
- Adolescent Medicine
- Healthcare Transition
Background:
- Adolescents with congenital heart disease (CHD) exhibit varied readiness for adult care.
- Key areas include CHD knowledge, self-management skills, and engagement in the transition process.
Purpose of the Study:
- To assess the feasibility of an individualized, in-person transition program for adolescents with CHD.
- To determine if educational and skill-building visits improve transition readiness aspects.
Main Methods:
- Retrospective cohort study of 519 patients (aged 14-21) in a transition program (2019-2021).
- Assessed CHD knowledge, transition skills, readiness for change, and engagement using validated questionnaires and team assessments.
- Multivariate mixed linear regression analyzed changes with repeated measures.
Main Results:
- Serial transition visits independently predicted increased knowledge, skills, readiness, and engagement (p < 0.05).
- Largest improvements were observed after the first visit for most outcomes.
- Lower scores were linked to non-private insurance; no association with CHD severity.
Conclusions:
- Individualized, in-person transition programming is feasible for adolescents with CHD.
- Serial visits enhance CHD knowledge, management skills, and engagement, even in complex cases.
- Further research should link transition readiness to long-term adult outcomes.
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