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Challenges With Accessing Home Care Among Medicaid Beneficiaries
Peggy B Leung1, Jennifer Sugijanto2, Abigail Shilvock2
1Division of General Internal Medicine, Department of Medicine, Weill Cornell Medicine, New York, New York.
JAMA Network Open
|May 26, 2026
Summary
Accessing home care for seniors with chronic conditions is difficult for Medicaid recipients in New York. Many agencies face long waits, limited hours, and high costs for supplemental care, hindering aging in place.
Area of Science:
- Gerontology
- Health Services Research
- Public Health Policy
Background:
- Older adults with chronic conditions often need formal home care to age in place.
- Accessing these services can be difficult and expensive, even with insurance coverage.
Purpose of the Study:
- To evaluate the availability and accessibility of home care services for Medicaid recipients in New York State.
- To identify barriers faced by individuals seeking formal home care.
Main Methods:
- A cross-sectional, secret shopper study involving telephone calls to licensed home care service agencies (LHCSAs) in New York.
- Trained investigators posed as caregivers seeking services for a hypothetical elderly patient with Medicaid.
Main Results:
- Only 51.1% of contacted LHCSAs accepted Medicaid, and 44.4% had wait times over one week for eligibility evaluations.
- Estimating covered care hours was difficult for most agencies; supplemental private pay averaged $33.35/hour.
- Key themes included process complexity, insufficient hours, workforce shortages, and high out-of-pocket costs.
Conclusions:
- Obtaining home care for Medicaid recipients in New York is a complex process with significant access barriers.
- Long wait times, unpredictable coverage, staffing issues, and high supplemental costs impede equitable access.
- Streamlining processes, increasing transparency, and supporting the workforce are crucial for improving home care access.
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