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Facilitating Research Participation: How Researchers Support People With Communication Support Needs to Decide to
Deborah L Lutz1, Karen R Fisher2
1Catholic University of Applied Sciences, Freiburg, Germany.
Summary
Researchers can effectively support individuals with intellectual disabilities in research participation by building trust and prioritizing their rights. This approach enhances inclusive research practices and upholds the right to choose.
Area of Science:
- Disability Studies
- Inclusion in Research
- Bioethics
Background:
- Lack of evidence on practical support for researchers aiding individuals with intellectual disabilities in research participation.
- Need to identify effective researcher support strategies that build on trusted relationships.
Purpose of the Study:
- To explore how researchers can effectively support decision-making for research participation among individuals with intellectual disabilities.
- To identify key elements of researcher support that foster trust and respect for rights.
Main Methods:
- Application of an analytical framework for effective decision-making support.
- Analysis of qualitative data from three ethnographic case studies on researcher support.
Main Results:
- Researchers acted as supporters by directly assisting individuals and engaging with their existing support networks.
- Support strategies prioritized the rights of individuals with intellectual disabilities throughout the decision-making process.
Conclusions:
- Researchers positioning themselves as supporters can leverage trusted relationships to facilitate informed participation.
- This approach represents a methodological and ethical advancement for inclusive research practices, upholding the right to choose.
Keywords:
communication support needsdecision makingintellectual disabilitiesqualitative field researchresearch participationsupportersMore Related Videos
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