Experiences and needs of informal caregivers for respite care: A mixed-methods systematic review

Informal caregivers provide most long-term care and often experience substantial burden; respite care offers temporary relief but remains underused. A mixed-methods systematic review was conducted to synthesize caregivers' experiences and needs regarding respite care. A comprehensive search of ten databases (Web of Science, Cochrane Library, PsycINFO, PubMed, Embase, CINAHL, CNKI, Wanfang, VIP, and SinoMed) was conducted in accordance with the EQUATOR guidelines and the PRISMA 2020 statement. Data were synthesized thematically using a data-based convergent synthesis design, and the quality of the included studies was assessed using the Mixed Methods Appraisal Tool (MMAT). Thirty-three studies met inclusion criteria. Three themes were identified: barriers to the respite journey (limited resources, lack of flexibility and accessibility, insufficient knowledge and understanding, and negative attitudes towards care), dawn on the journey (perceived benefits for caregivers, care recipients, and family functioning), and needs beyond the individual level (service quality optimization, professional training, and supportive policies and regulations). Improving respite uptake and sustainment requires flexible access pathways, trustworthy person-centred services, and system-level investment in workforce and policy supports. These insights can inform clinical practice, education, and future research.