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Related Concept Videos

Issues And Trends In Healthcare Delivery System01:29

Issues And Trends In Healthcare Delivery System

The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Purpose of Health Records II01:19

Purpose of Health Records II

Health records serve various essential purposes in the healthcare system. Here are some key purposes:
Integrated Healthcare System01:20

Integrated Healthcare System

An integrated healthcare system (IHS) is a set of organizations that provides for or arranges to provide coordinated and continuous service to a defined population. The IHS takes responsibility for that particular population's health status and outcome, both clinically and fiscally. An integrated healthcare system is a well-organized, well-coordinated, and collaborative network. The integrated delivery system is a network that connects different healthcare providers to deliver organized,...
Health Information Technology and Healthcare Information System01:30

Health Information Technology and Healthcare Information System

Health Information Technology (HIT)
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
Purpose of Health Records I01:11

Purpose of Health Records I

The vital purpose of health records is to provide a complete and accurate account of a patient's medical history, including communication, diagnostic and therapeutic orders, care planning, research, and quality review.
Here's a breakdown of how health records serve these purposes:
Nursing Clinical Information System01:27

Nursing Clinical Information System

Nursing Clinical Information System (NCIS)
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:

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Implementation of a Real-Time Psychosis Risk Detection and Alerting System Based on Electronic Health Records using CogStack
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A New Playbook: State-Driven Solutions for Resilient Health Data.

Ninez A Ponce1,2, Riti Shimkhada1, Tara Becker1

  • 1UCLA Center for Health Policy Research.

The Milbank Quarterly
|June 22, 2026
PubMed
Summary
This summary is machine-generated.

State investment in health data infrastructure is crucial for addressing health disparities. Building resilient, equity-centered systems requires data disaggregation legislation, interoperability, and strong governance to ensure data access and privacy.

Keywords:
United Statesdata collectionfederal governmenthealth equitypolicypopulation characteristicsracial groupsstate government

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Area of Science:

  • Public Health Data Infrastructure
  • Health Equity Research
  • State-Level Policy Analysis

Background:

  • Health equity is contingent upon data equity, ensuring community representation in data for disparity identification and accountability.
  • Federal health data infrastructure changes and capacity reductions create uncertainty for state public health officials.
  • Investing in resilient state data infrastructure is a priority for population health outcomes.

Purpose of the Study:

  • To examine the impact of federal health data infrastructure changes on state data equity capacity.
  • To identify policy responses for states to advance data equity.
  • To synthesize evidence on state-level data disaggregation legislation, interoperability, governance, and dissemination.

Main Methods:

  • Review of state data disaggregation legislation across the US.
  • Case study analysis of the California Health Interview Survey (CHIS) as a model for operationalizing data mandates.
  • Synthesis of evidence on data interoperability, governance frameworks, and dissemination strategies.

Main Results:

  • Several states are expanding data collection beyond federal minimums, including detailed race/ethnicity subgroups and categories for Middle Eastern/North African populations.
  • Legislation in states like Colorado and Oregon includes data collection on sexual orientation, gender identity, and disability status.
  • Persistent challenges include incomplete demographic data, workforce and interoperability gaps, and the need for robust privacy-preserving governance.

Conclusions:

  • State-led data infrastructure development is essential for effective public health practice and achieving health equity.
  • An ecosystem of interoperable, inclusive, and community-accountable data systems is needed, rather than 50 incompatible systems.
  • Realizing this vision requires diversified funding, cross-agency coordination, strong governance, and community engagement to sustain progress in measuring disparities.