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Describing Intellectual Disability in Local Public Health Community Health Assessments and Community Health
Haleigh Leslie1, Kate Beatty, Dawn Rowe
1Author Affiliations: Center for Rural Health Research, College of Public Health, East Tennessee State University, Johnson City, Tennessee (Dr Leslie, Dr Beatty, Ms Havrda, and Dr Balio); Department of Health Services Management and Policy, College of Public Health, East Tennessee State University, Johnson City, Tennessee (Dr Leslie, Dr Beatty, and Dr Balio); Clemmer College of Education and Human Development, East Tennessee State University, Johnson City, Tennessee (Dr Rowe); and Special Olympics International, Washington, District of Columbia (Mr Quade).
Local health departments rarely include people with intellectual disabilities (ID) in community health assessments and improvement plans. This study highlights a significant gap in ID inclusion and participation in public health planning.
Area of Science:
- Public Health
- Health Equity
- Disability Studies
Background:
- Community Health Assessments (CHAs) and Community Health Improvement Plans (CHIPs) are foundational documents guiding local health department (LHD) initiatives.
- Effective public health planning requires inclusive representation of all community members, including those with intellectual disabilities (ID).
Purpose of the Study:
- To evaluate the extent of intellectual disability inclusion in CHAs and CHIPs among accredited LHDs.
- To identify gaps in language, participation, and goal setting related to intellectual disability in public health planning documents.
Main Methods:
- Cross-sectional analysis of CHAs and CHIPs from Public Health Accreditation Board-accredited LHDs.
- Examination of documents for specific mention of intellectual disability partners, goals, objectives, or activities.
- Content analysis of language used to describe intellectual disability within the assessments and plans.
Main Results:
- Only approximately 5% of CHAs involved an intellectual disability partner in their development.
- Fewer than 2% of CHIPs included goals, objectives, or activities specifically for people with ID.
- Many CHAs framed intellectual disability as a condition to be prevented rather than a population to be included.
Conclusions:
- There is a significant lack of intellectual disability inclusion and representation in CHAs and CHIPs.
- Gaps exist in ID-inclusive language and community-based participation in public health planning.
- Increased inclusion of people with ID in these planning processes and documents is necessary for equitable public health outcomes.
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