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Published on: July 14, 2023
An educational needs assessment of children with juvenile rheumatoid arthritis
Insights
This study used the PRECEDE model to identify key behaviors for children with juvenile rheumatoid arthritis (JRA) to manage their condition, focusing on school participation and physical function.
Area of Science:
- Pediatric Rheumatology
- Health Education
- Behavioral Science
Background:
- Juvenile rheumatoid arthritis (JRA) significantly impacts children's daily lives and school participation.
- Effective self-management strategies are crucial for optimizing outcomes in pediatric rheumatic diseases.
Purpose of the Study:
- To apply the PRECEDE model for organizing needs assessment data in children with JRA.
- To define essential self-management behaviors for affected children and their families.
- To inform the planning of targeted educational interventions.
Main Methods:
- Utilized a comprehensive needs assessment approach.
- Included literature review, parent surveys (n=51), parent group interviews (n=7), pilot program data, and clinical expertise.
- Employed the PRECEDE framework for data organization and analysis.
Main Results:
- Identified two critical sets of interrelated behavioral factors.
- Factor 1: Managing the school environment for optimal participation and minimizing disability.
- Factor 2: Addressing pain, stiffness, disease process, and preserving joint function.
Conclusions:
- These behavioral factors are vital for enhancing mobility, joint function, and autonomy in daily activities for children with JRA.
- Educational interventions should target these identified behavioral domains to improve quality of life.
Objective:
Our objective is to describe the use of the PRECEDE model (predisposing, reinforcing, and enabling causes in educational diagnosis and evaluation) to organize needs assessment data in order to define self-management behaviors and plan an educational intervention for children with juvenile rheumatoid arthritis (JRA) and their families.
Methods:
Analysis was done of needs assessment data collected from several sources: 1) literature review, 2) survey of parents of 51 children with JRA, 3) group interview of seven parents of children with JRA, 4) results of pilot programs, and 5) clinical experience of an interdisciplinary pediatric rheumatology team.
Results:
Two sets of interrelated behavioral factors were identified through the needs assessment: 1) those related to managing the school environment to facilitate optimal participation and to minimize school-related disability, and 2) those related to treating pain and stiffness, intervening in the disease process, and preserving joint function.
Conclusion:
Both of these sets of behavioral factors may be related to the optimization of children's mobility, joint function, and autonomy of activities of daily living and should be targets of an educational intervention.
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