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Jane Kaye

Showing results (81-90 of 99) with videos related to

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Research Involvement and Engagement|February 2, 2021
The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN projectNao Hamakawa, Atsushi Kogetsu, Moeko Isono, et al.
Journal of Medical Internet Research|November 23, 2023
Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European CountriesRoberta Biasiotto, Jennifer Viberg Johansson, Melaku Birhanu Alemu, et al.
Science (New York, N.Y.)|May 4, 2019
Consent insufficient for data releaseDianne Nicol, Lisa Eckstein, Heidi Beate Bentzen, et al.
BMC Pregnancy and Childbirth|January 22, 2016
eRegistries: Electronic registries for maternal and child healthJ Frederik Frøen, Sonja L Myhre, Michael J Frost, et al.
British Journal of Sports Medicine|November 20, 2015
Direct-to-consumer genetic testing for predicting sports performance and talent identification: Consensus statementNick Webborn, Alun Williams, Mike McNamee, et al.
Annals of Internal Medicine|February 19, 2019
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?Deborah Mascalzoni, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, et al.
Human Genomics|March 9, 2018
Including all voices in international data-sharing governanceJane Kaye, Sharon F Terry, Eric Juengst, et al.
Plos Biology|March 28, 2008
Research ethics recommendations for whole-genome research: consensus statementTimothy Caulfield, Amy L McGuire, Mildred Cho, et al.
The Journal of Pediatrics|May 28, 2023
Concordance of International Regulation of Pediatric Health ResearchMark A Rothstein, Dimitri Patrinos, Kyle B Brothers, et al.
Nature Genetics|January 8, 2021
Toward better governance of human genomic dataKieran C O'Doherty, Mahsa Shabani, Edward S Dove, et al.
Pageof 10

Showing results (81-90 of 99) with videos related to

Sort By:
Pageof 10
Research Involvement and Engagement|February 2, 2021
The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN projectNao Hamakawa, Atsushi Kogetsu, Moeko Isono, et al.
Journal of Medical Internet Research|November 23, 2023
Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European CountriesRoberta Biasiotto, Jennifer Viberg Johansson, Melaku Birhanu Alemu, et al.
Science (New York, N.Y.)|May 4, 2019
Consent insufficient for data releaseDianne Nicol, Lisa Eckstein, Heidi Beate Bentzen, et al.
BMC Pregnancy and Childbirth|January 22, 2016
eRegistries: Electronic registries for maternal and child healthJ Frederik Frøen, Sonja L Myhre, Michael J Frost, et al.
British Journal of Sports Medicine|November 20, 2015
Direct-to-consumer genetic testing for predicting sports performance and talent identification: Consensus statementNick Webborn, Alun Williams, Mike McNamee, et al.
Annals of Internal Medicine|February 19, 2019
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?Deborah Mascalzoni, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, et al.
Human Genomics|March 9, 2018
Including all voices in international data-sharing governanceJane Kaye, Sharon F Terry, Eric Juengst, et al.
Plos Biology|March 28, 2008
Research ethics recommendations for whole-genome research: consensus statementTimothy Caulfield, Amy L McGuire, Mildred Cho, et al.
The Journal of Pediatrics|May 28, 2023
Concordance of International Regulation of Pediatric Health ResearchMark A Rothstein, Dimitri Patrinos, Kyle B Brothers, et al.
Nature Genetics|January 8, 2021
Toward better governance of human genomic dataKieran C O'Doherty, Mahsa Shabani, Edward S Dove, et al.
Pageof 10