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Genetics in Medicine : Official Journal of the American College of Medical Genetics|October 9, 2018
Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policiesMahsa Shabani, Stephanie O M Dyke, Luca Marelli, et al.Plos Biology|January 1, 2016
Controlled Access under Review: Improving the Governance of Genomic Data AccessMahsa Shabani, Stephanie O M Dyke, Yann Joly, et al.Biopreservation and Biobanking|August 25, 2017
Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?Mahsa Shabani, Edward S Dove, Madeleine Murtagh, et al.Digital Health|October 6, 2023
Crowdsourcing smartphone data for biomedical research: Ethical and legal questionsMichael Lang, Kyle McKibbin, Mahsa Shabani, et al.European Journal of Human Genetics : EJHG|June 15, 2023
Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratoryAlexander Bernier, Fruzsina Molnár-Gábor, Bartha M Knoppers, et al.Personalized Medicine|May 23, 2018
Conference Scene: Direct-to-consumer genetic testing in the age of personalized medicinePascal BorryGenome Medicine|November 27, 2009
Coming of age of personalized medicine: challenges aheadPascal BorryScience (New York, N.Y.)|March 24, 2022
Will the European Health Data Space change data sharing rules?Mahsa ShabaniMolecular Systems Biology|March 23, 2021
The Data Governance Act and the EU's move towards facilitating data sharingMahsa ShabaniJournal of the American Medical Informatics Association : JAMIA|November 30, 2018
Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?Mahsa ShabaniPageof 22