转变为行动:从数据细分到青少年 (和其他人) 的公平互操作性
Chethan Sarabu1, Marianne Sharko2, Carolyn Petersen3
1Department of Pediatrics, Stanford University School of Medicine, Palo Alto, California, United States.
Applied clinical informatics
|July 19, 2023
概括
"21世纪治疗法"改善了电子保护健康信息 (ePHI) 的获取,但也给青少年带来了隐私挑战. 一个国家工作组Shift正在制定标准,以保护敏感的ePHI并确保公平的互操作性.
科学领域:
- 医疗信息学 医疗信息学
- 患者的隐私 患者的隐私
- 青少年健康 青少年健康
背景情况:
- 技术进步和"21世纪治疗法"增加了电子保护健康信息 (ePHI) 的访问和互操作性.
- 这给青少年患者带来了重大的隐私和保密挑战.
- 有限的数据保护标准阻碍了对敏感健康信息的公平获取.
研究的目的:
- 调查青少年安全,公平访问和ePHI的互操作性方面的挑战.
- 确定现有的策略,正在进行的需求,以及改善青少年ePHI管理的未来工作.
主要方法:
- 在2020年成立了一个由200多名专家利益相关者组成的全国性工作组"转变"的形成.
- 专注于标准化细粒度识别和保护敏感的ePHI.
- 将挑战分类为标准和术语,可用性和实施,以及道德,法律和政策.
主要成果:
- 通过Shift开发高优先级的临床用例.
- 识别未成熟和不一致的技术标准和敏感数据的术语.
- 在关键领域组织挑战,以指导改进工作.
结论:
- 转变正在积极解决使用ePHI的青少年的隐私和保密问题.
- 在应对这些复杂挑战时,Shift内部的多元化专业知识至关重要.
- 标准化和改进的术语对于安全和公平的青少年ePHI互操作性至关重要.
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