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Tumor Treating Field Therapy in Combination with Bevacizumab for the Treatment of Recurrent Glioblastoma
Published on: October 27, 2014
Brain tumor survivors speak out
1Children's Hospitals & Clinics of Minnesota, Psychological Services 62-200, 360 Sheridan Street, Saint Paul, MN 55102, USA. bonnie.carlson-green@childrensmn.org
Adult survivors of childhood brain tumors face challenges in social/emotional adjustment, neurocognitive late effects, and employment. This study offers guidelines to improve outcomes for these survivors.
Area of Science:
- Pediatric Oncology
- Neuro-oncology
- Survivorship Research
Background:
- Childhood brain tumors require ongoing research for improved patient outcomes.
- Individual differences in outcomes necessitate understanding disease, treatment, and contextual factors.
- Survivors often face long-term challenges impacting quality of life.
Purpose of the Study:
- To review key concerns for childhood brain tumor survivors.
- To integrate survivor perspectives with existing literature.
- To provide guidelines for healthcare professionals to enhance survivor care.
Main Methods:
- Combined idiographic (survivor observations) and nomothetic (literature review) approaches.
- Reviewed literature on brain tumor and childhood cancer survivors.
- Focused on six critical areas: social/emotional adjustment, insurance, neurocognitive late effects, sexuality, employment, and information access.
Main Results:
- Identified significant concerns across social/emotional, neurocognitive, and vocational domains.
- Highlighted survivor experiences regarding information access and insurance.
- Synthesized idiographic and nomothetic data to inform recommendations.
Conclusions:
- Childhood brain tumor survivorship requires a comprehensive approach addressing multiple life domains.
- Guidelines are proposed to improve psychosocial and neurocognitive outcomes.
- Healthcare professionals can utilize these guidelines to better support survivors.
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