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Updated: May 31, 2026
09:19
Community-based Adapted Tango Dancing for Individuals with Parkinson's Disease and Older Adults
Published on: December 9, 2014
Developing community partner training: regulations and relationships.
Stephanie Solomon1, Patricia J Piechowski
1Albert Gnaegi Center for Health Care Ethics, Saint Louis University, St Louis, MO 63104-1314, USA. stesolom@gmail.com
Summary
Community partners face unique ethical challenges in research. This study initiated changes in research ethics board (REB) oversight and training to better support community-based research realities.
Area of Science:
- Community-based participatory research
- Research ethics
- Regulatory oversight
Background:
- Funders increasingly support community-partnered research.
- Existing regulatory structures do not adequately address community partners' ethical needs.
- A mismatch exists between regulatory demands and community-based research realities.
Purpose of the Study:
- To address the mismatch between regulatory demands and community-based research realities.
- To initiate changes in research ethics board (REB) oversight and training for community-partnered research.
Main Methods:
- Engaged in reconnaissance and negotiations with local community partners and REBs.
- Focused on the University of Michigan's REB structure and training requirements.
Main Results:
- Preliminary process yielded changes in REB oversight structure.
- Modified training requirements for community-partnered research were implemented.
- Insights and materials were generated for local and other institutions' REBs.
Conclusions:
- The process initiated a dialogue to align regulatory oversight with community-based research needs.
- Changes in REB structure and training represent a step towards better supporting collaborative research.
- Further evaluation is needed to determine the ultimate impact of these changes.
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