Conceptualizing inclusive research with people with intellectual disability

Area of Science:

• Disability Studies
• Research Methodology
• Social Inclusion

Background:

• Funding bodies increasingly mandate the inclusion of people with intellectual disabilities in research.
• Conceptual clarity, evidence of impact, feasibility, and rigor of inclusive research remain under-examined.
• Limited literature exists on the diverse methodologies for conducting inclusive research.

Purpose of the Study:

• To develop a clearer conceptual framework for inclusive research.
• To identify and discuss the issues associated with different approaches to inclusive research.
• To guide researchers and administrators in considering the feasibility of inclusive research.

Main Methods:

• A comprehensive review of peer-reviewed literature and key texts.
• Reflection on practical experience with a self-advocacy group in historical research.
• Analysis of existing writings on inclusive research methodologies.

Main Results:

• Three distinct approaches to inclusive research were identified: advisory, leading and controlling, and collaborative.
• Each approach is illustrated and discussed, highlighting their unique characteristics and applications.
• The study outlines the advantages and disadvantages of each method, aiding in selection for specific research contexts.

Conclusions:

• A conceptual framework is presented to aid in the planning and execution of inclusive research.
• The feasibility of inclusive research can be better assessed using this framework.
• A strong self-advocacy movement is a crucial factor for the success of inclusive research.