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Nizar Mahlaoui1, Béatrice Langellier-Bellevue2

  • 1Centre de référence déficits immunitaires héréditaires (Ceredih), Hôpital universitaire Necker-Enfants malades, AP-HP, 149 rue de Sèvres, 75015 Paris, France; Unité d'immuno-hématologie et rhumatologie pédiatrique, Hôpital universitaire Necker-Enfants malades, AP-HP, 149 rue de Sèvres, 75015 Paris, France; Coordinateur médical du Programme Transition, Hôpital universitaire Necker-Enfants malades, AP-HP, 149 rue de Sèvres, 75015 Paris, France.

Soins. Pediatrie, Puericulture
|July 15, 2017
PubMed
Summary

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Transitioning young patients with chronic conditions from pediatric to adult care is a critical phase. This process impacts patients, families, and healthcare systems, necessitating structured support programs.

Area of Science:

  • Pediatric to Adult Transition Care
  • Chronic Disease Management
  • Adolescent and Young Adult Health

Context:

  • The transition from pediatric to adult healthcare is a critical period for adolescents and young adults with rare or chronic conditions.
  • This transition poses significant challenges for patients, families, and healthcare providers.
  • It represents a crucial juncture in both individual medical journeys and public health.

Purpose:

  • To address the complexities and challenges associated with the transition from pediatric to adult medical care.
  • To implement a structured program supporting patients and caregivers during this critical phase.
  • To mitigate the individual and public health issues linked to healthcare transitions.

Summary:

  • A specific program has been established at Hôpital Necker-Enfants Malades in Paris to manage the transition of care for young individuals with rare/chronic conditions.
Keywords:
adolescentchronic diseasejeune adultemaladie chroniquemaladie rarerare diseasetransfertransferttransitionyoung adult

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  • The program aims to support both patients and their caregivers through this critical medical and life stage.
  • This initiative acknowledges the medical-economic consequences and public health implications of suboptimal transitions.

    • Impact:

    • Aims to improve health outcomes for young adults with chronic conditions.
    • Seeks to reduce the burden on healthcare systems by optimizing the transition process.
    • Enhances the continuity of care and patient well-being during a vulnerable period.