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When Personal Feels Invasive: Foreseeing Challenges in Precision Medicine Communication
Chelsea L Ratcliff1, Kimberly A Kaphingst1,2, Jakob D Jensen1,2
1a Department of Communication , University of Utah , Salt Lake City , Utah , USA.
Journal of Health Communication
|December 28, 2017
Summary
Precision medicine (PM) offers personalized healthcare but may raise privacy concerns. Understanding and mitigating potential patient resistance is key for successful implementation of this tailored approach.
Area of Science:
- Health Communication
- Personalized Medicine
- Patient Engagement
Background:
- Precision medicine (PM) tailors healthcare using individual biological and psychosocial data.
- Public discourse reveals concerns regarding privacy and autonomy with personalized health guidance.
- Existing tailoring literature suggests potential for unintended consequences like personalization reactance.
Purpose of the Study:
- To review existing research on tailoring and communication to identify challenges in precision medicine communication.
- To explore patient-centered communication strategies to mitigate potential resistance to PM.
- To offer preliminary guidance for practitioners and identify research topics in PM communication.
Main Methods:
- Review of extant tailoring literature and related research.
- Application of a patient-centered communication perspective.
- Analysis of potential communication challenges and mitigation strategies in PM.
Main Results:
- Personalization reactance, stemming from perceived threats to privacy or autonomy, is a potential challenge in PM.
- Effective communication strategies are needed to address consumer concerns and foster acceptance of PM.
- Understanding the nuances of PM communication is crucial for both healthcare providers and researchers.
Conclusions:
- Addressing privacy and autonomy concerns is vital for the successful adoption of precision medicine.
- Patient-centered communication approaches can help mitigate resistance and improve patient engagement with PM.
- Further research is needed to explore effective communication strategies in the emerging field of precision medicine.
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