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[The multidisciplinary and specific care of children with trisomy 21]
Caroline Philippe Stenger1, Corinne Mary1, Ophélie Nartz1
1Camps Aapei Strasbourg et environs, 33 rue du Barrage, 67300 Schiltigheim, France.
Insights
Early medico-social centers provide crucial support for children with disabilities. This program offers specialized multidisciplinary care for children with Down syndrome (trisomy 21) and their families, focusing on early parental guidance.
Area of Science:
- Pediatrics
- Developmental Psychology
- Social Work
Background:
- Early medico-social centers are vital for children aged 0-6 with disabilities or developmental disorders.
- Children with Down syndrome (trisomy 21) require specialized, integrated care.
- Parental support is a critical component of early intervention services.
Purpose of the Study:
- To describe a specific multidisciplinary follow-up program for children with trisomy 21.
- To highlight the role of early medico-social centers in supporting these children and their families.
- To emphasize the importance of early parental guidance and support.
Main Methods:
- Implementation of a specialized multidisciplinary follow-up protocol.
- Collaboration with a network of partners to provide comprehensive support.
- Focus on early guidance and support strategies for parents.
Main Results:
- A structured approach to the care of children with trisomy 21 was established.
- Enhanced support systems were developed for families of children with Down syndrome.
- Early parental guidance was integrated into the follow-up process.
Conclusions:
- Multidisciplinary early intervention programs are effective for children with trisomy 21.
- Collaborative networks significantly enhance the support provided to families.
- Prioritizing early parental guidance is essential for successful developmental outcomes.
Abstract:
A centre for early medico-social action supports children aged between 0 and 6 with a disability or likely to present a developmental disorder. One such centre has put in place a specific multidisciplinary follow-up of children with trisomy 21 and their family, with the added support of a wide network of partners. Particular attention is paid to providing early guidance and support for the parents.
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