Caregiver Burden in Primary Congenital Glaucoma

Area of Science:

• Ophthalmology
• Public Health
• Psychology

Background:

• Primary congenital glaucoma (PCG) significantly impacts the lives of affected children and their families.
• Caregiver well-being is crucial for effective management and support of children with chronic conditions.
• Understanding factors influencing caregiver quality of life (QOL) is essential for developing targeted interventions.

Purpose of the Study:

• To investigate the demographic, clinical, and socioeconomic factors associated with variations in QOL among caregivers of children with PCG in South India.
• To identify specific aspects of caregiver QOL most affected by the challenges of caring for a child with PCG.

Main Methods:

• A cross-sectional survey was conducted with caregivers of children under 18 diagnosed with PCG.
• Participants completed the PHQ-9 for depressive symptoms and the CarCGQoL for caregiver QOL.
• Data analysis involved Spearman correlation and linear regression to identify associations with caregiver QOL.

Main Results:

• Child's age and duration of PCG were significantly associated with lower caregiver QOL.
• Caregiver QOL showed a strong negative correlation with depressive symptoms (PHQ-9 scores).
• Specific QOL domains affected included self-confidence, anger, irritability, appetite, and interest in leisure activities.

Conclusions:

• Child's age and disease duration are key factors influencing caregiver QOL in PCG.
• Depressive symptoms are closely linked to diminished caregiver QOL, emphasizing the need for mental health support.
• Findings can inform the design of interventions to enhance caregiver well-being and optimize care for children with PCG.