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Non-medical interventions for individuals with Rett syndrome: A systematic review
Annika Nina Amoako1, Dougal Julian Hare1
1Cardiff University, Cardiff, UK.
Journal of Applied Research in Intellectual Disabilities : JARID
|December 14, 2019
Summary
Non-medical interventions for Rett syndrome, including communication and music, show positive outcomes. However, more high-quality research is needed to confirm these benefits.
Area of Science:
- Neuroscience
- Developmental Psychology
- Rehabilitation Science
Background:
- Rett syndrome research has primarily focused on medical interventions, with non-medical approaches being less explored.
- Recent advancements in communication technologies offer new avenues for intervention in Rett syndrome.
Purpose of the Study:
- To systematically review non-medical interventions for Rett syndrome.
- To evaluate the methodological quality and outcomes of existing research on non-medical interventions.
Main Methods:
- A systematic literature search was conducted across Embase, PsycINFO, and MEDLINE for peer-reviewed papers.
- Thirteen studies meeting methodological quality standards were reviewed, involving 60 participants.
Main Results:
- Interventions included music, assistive technology, augmentative and alternative communication, attentional training, and cognitive rehabilitation.
- Positive outcomes were reported in communication, quality of life, brain stem activity, physical fitness, and reduced stereotyped behaviors.
- Common limitations included challenges with generalizability, standardization, follow-up, and small sample sizes.
Conclusions:
- The current body of high-quality research on non-medical interventions for Rett syndrome is limited.
- Further research is essential to enhance the validity and generalizability of these interventions.
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