[Cystic fibrosis, support and end of life of patients]
1CRCM pédiatrie et CRCM pneumologie adulte de Lille, 2, avenue Oscar-Lambert, 59037 Lille cedex, France.
Abstract:
Cystic fibrosis is a chronic disease detected at birth that requires multidisciplinary follow-up throughout life. Two singular stories guide us in the reflection on end-of-life care. Firstly, it is a painful stage when it comes to giving up lung transplantation. The care receiver also wants continuity of care in line with his or her philosophy of life. The partnership of the caregivers with the ethical space and/or palliative care of the hospital becomes a necessary third party for a more peaceful end of life.
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