Building a Self-Management Toolkit for Patients with Pediatric Inflammatory Bowel Disease: Introducing the resilience...

Area of Science:

• Pediatric to adult healthcare transition
• Inflammatory Bowel Disease (IBD) management
• Adolescent and young adult health

Background:

• Transitioning from pediatric to adult healthcare is complex for youth with Inflammatory Bowel Disease (IBD).
• Many IBD clinical teams lack resources for comprehensive transition programs.
• Effective transition support is vital for long-term patient outcomes.

Purpose of the Study:

• To describe the Resilience5 framework for supporting IBD transition care.
• To identify key teachable skills for enhancing adolescent and young adult resilience.
• To provide a resource for IBD clinical teams to implement transition interventions.

Main Methods:

• This is a review article.
• The Resilience5 framework is described, encompassing five key skill domains.
• The review synthesizes existing knowledge on resilience and IBD self-management.

Main Results:

• The Resilience5 framework includes: self-efficacy, disease acceptance, self-regulation, optimism, and social support.
• These skills are teachable and can be integrated into routine IBD care.
• The framework aims to offset disease-interfering behaviors and build resilience.

Conclusions:

• The Resilience5 framework offers a practical approach to support IBD self-management during healthcare transitions.
• Implementing these skills can improve resilience in adolescents and young adults with IBD.
• Routine reinforcement of these skills in clinical settings is recommended.