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Neuropalliative care in a tertiary-level hospital
Diego Swerts1, Ana Araújo2, Polyana Vulcano2
1Department of Neurology, Hospital Israelita Albert Einstein, Sao Paulo, Brazil diegobelandrino@gmail.com.
Most neurological patients need palliative care, but few receive it, impacting quality of life. Integrating palliative care into neurology is crucial for better patient outcomes.
Area of Science:
- Neurology
- Palliative Care
- Quality of Life
Background:
- Palliative care is a specialized field focused on improving the quality of life for patients with severe neurological diseases.
- Neurological conditions often lead to complex symptoms requiring specialized supportive care.
Purpose of the Study:
- To determine the frequency of neurological inpatients with indications for palliative care.
- To evaluate symptomatology, demographics, and supportive care needs in this population.
- To assess the utilization of advance directives in neurological care.
Main Methods:
- A cross-sectional analytical study was conducted in a neurological semi-intensive care unit.
- The Palliative Performance Scale identified patients with palliative care needs.
- Demographic and clinical data were analyzed using statistical tests (Χ², Kruskal-Wallis).
Main Results:
- 58% of 198 neurological inpatients had palliative care needs.
- Only 6.9% received palliative care team assessment; 9.56% had advance directives.
- Patients needing palliative care exhibited more symptoms and required greater supportive measures.
Conclusions:
- A significant gap exists between the need for palliative care in neurology and its actual provision.
- This deficit in care delivery negatively impacts patient quality of life.
- Enhanced integration and discussion of palliative care within neurology are essential.
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