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Updated: Jun 8, 2025

A Precision Medicine Tool for Measurement and Monitoring of Hemoglobin S in Sickle Cell Disease Patients Receiving Transfusion Therapy
A Winding Road to Health Care Equity in Sickle Cell Disease
Ritika Walia1, Kleber Y Fertrin2, Daniel E Sabath3
1Division of Hematopathology, Department of Laboratory Medicine and Pathology, University of Washington, 1144 Eastlake Avenue East, LG-200, Seattle, WA 98109, USA.
Abstract:
Sickle cell disease (SCD) is a genetic disorder where red blood cells sickle, causing anemia and pain. Historically linked to marginalized groups, SCD saw little progress in treatment strategies for decades. Addressing these requires holistic strategies including dedicated centers, education, patient inclusion, and tackling implicit bias. Efforts must ensure treatments are accessible and stigma-free. Progress depends on collaboration and advocacy, aiming for an equitable, patient-focused health care system responsive to the unique needs of those with SCD. This review illustrates the actionable steps that the medical community can take to improve care for patients with SCD.
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