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Specialized pediatric palliative care in Italy: where are we going? The Palliped 2022-2023 study

Franca Benini1, Anna Mercante2, Sara Di Nunzio3

  • 1Pediatric Palliative Care, Pain Service, Department of Women's and Children's Health, University Hospital of Padua, Padua, Italy. franca.benini@aopd.veneto.it.

Italian Journal of Pediatrics
|January 25, 2025
PubMed

Insights

The PalliPed project shows improving pediatric palliative care (PPC) services in Italy, with more centers and patients served. However, challenges remain in providing comprehensive care models and resources for increasing patient needs.

Area of Science:

  • Pediatric healthcare research
  • Palliative care services
  • Health services monitoring

Background:

  • The PalliPed project established a national database for specialized pediatric palliative care (PPC) in Italy.
  • This study presents findings from the 2022-2023 monitoring phase, updating knowledge on PPC provision.

Purpose of the Study:

  • To provide a continuously updated national database for census and monitoring of specialized PPC activities in Italy.
  • To assess the current state of specialized PPC services in Italy based on the 2022-2023 data.

Main Methods:

  • An observational, cross-sectional study design was employed.
  • Italian specialized PPC centers completed an online survey on their 2022-2023 clinical activity.
  • Data revision and comparison with the initial PalliPed study from 2021 were performed.

Main Results:

  • 18 centers from 14 regions participated, with three new centers added since 2021.
  • Regional coverage increased to 54% (from 45%), but 24/7 service decreased to 23% (from 27%).
  • The number of followed patients significantly increased from 1,209 (2019) to 2,734 (2023), with a rise in PPC providers.

Conclusions:

  • The PalliPed project offers a comprehensive overview of specialized PPC in Italy.
  • Data indicate a general improvement in specialized PPC service availability, yet challenges persist.
  • Increased efforts are needed for better care models and resources, given the rising number of children requiring PPC.
Abstract

Keywords:
Life-limiting conditionsLife-threatening conditionsNational networkPediatric palliative careTerminal illness

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